Monday, May 24, 2010

Still Here

Update on my little man: He's really taking off verbally. Every day he surprises us with something new, and the best of it is that he really seems to enjoy it. Like, hey- we can communicate! Huh. Who knew? On the other hand, his feeding issues are reaching fever pitch. Basically, he's on a liquid diet (PediaSure, drinkable yogurt, instant breakfast, etc.) with a few crunchy snacks thrown in. Occasional bacon. It's freaking me out, because he's roughly 30% for weight to begin with, and well over 100% for height. I buy any beverage which claims to have protein in it, sneak in some veggies with the fruit juice, and sneak vitamins into his drinks. I'm expecting my hair and/or teeth to spontaneously fall out any time. Stressed. Out. Also, he's dropped some behaviors of concern, but picked up others. Like this:



So, the blocks have different things on all six sides, but each has a side with a letter surrounded by squiggles, and he likes to line them up on that side. A "stimulating" behavior. On the other hand, he is super-buds with Miss E at the moment, and that makes me hopeful. So, yeah, still all over the place.


Still in limbo diet-wise. I decided to take a break from counting points Easter weekend, and... here we are. I'm glad to say that I'm not so far off the wagon that I've gained back my losses (at least, no more than a pound or two), but obviously, I have a LOT of work to do. I have to say, WW did work, so I know that if I get back in gear, I'll be happy with the results. Drag. I'd rather eat ice cream.

Update on baby L: He and his family are at St. Jude's for 4 months for inpatient chemo. I am so glad that they are there, getting the best care possible. Also of note is that they are provided free housing for their whole family for the duration of their stay. Who provides it? Target. Yet another reason to love the best store on earth. As such, I have been increasing my weekly donations (read: shopping) accordingly. Baby L gets to stay at the apartment with his family between doses, as long as he's not too sick, which is wonderful, and he's tolerating the treatment quite well. Both employers are being supportive and doing the right thing, which is rare, and I'm so glad that they don't have that hanging over their heads when their focus is so clearly required elsewhere. The most recent MRI and spinal both came back clear, so the little man is doing well. Next up is radiation at MD Anderson, then oral chemo at home. I'm hoping that their Christmas wishes this year are just to wipe this past year off the books and look ahead to much better times.